chronic illness Archives

Amy lives with multiple chronic illnesses including severe ME/CFS. She is forced to spend 99% of her time in bed being cared for. This is a self portrait of Amy, alone in her pj's in bed.

I Didn’t Choose The Pyjama Lifestyle, It Chose ME

An insight into how chronic illness, ME/CFS, affects wardrobe, style and dreams of independent living. Who chooses a pyjama lifestyle?

How To Support Someone With ME/CFS

For M.E Awareness Month I’m offering simple ways to support a person with ME/CFS that take little time or effort but can mean a lot!

Must Read Books on ME/CFS – Support ME

I’ve collated my must read books on ME/CFS, the neurological multi systemic disease that is plagued by politics & has award winning Nobel prize scientists rushing to cure!

Amy is lying on her bed, her head resting on a cushion, she is wrapped in a throw. She is resting and looks exhausted. Amy is sick with ME/CFS. This post discussed why M.E Awareness Month is difficult for people with the illness.

Why M.E Awareness Month Is Difficult For The Very People It Is Designed To Help

M.E Awareness Month is all about raising awareness and a better understanding of ME/CFS, one that is vastly needed. However, often, it can be difficult for PWME, here’s why.

Amy a white female with brown mid length curly hair sits, supported by cushions, crossed legged on her bed covered with a throw. She has multiple invisible illness, chronic illness and is discussing the effects of the covid-19 vaccine in relation to these.

Covid-19 Vaccine – My Experience As Someone With Chronic Illness

Living with chronic illness our reaction to vaccines can be different to healthy folks. Today I’m sharing my experience with the covid-19 vaccine.

Hobbies – Find The Hobby To Suit You

We’re chatting hobbies today! With advice from many who’ve had to adjust to a slower lifestyle. We’ve got recommendations for a new hobby in many diverse categories.